"The best and most beautiful things cannot be seen or touched-they must be felt with the heart." Hellen Keller

Monday, September 27, 2010

Oh what fun we will have!

As you can see the party took place! Indeed it did! After months and months of planning, we pulled it off! I am sorry I wasn't able to post a picture of everyone there. We had SUCH a good turnout! How many one year old's have a four hour party with over 100 guests. I am "guesstimating" of course but we had a really big turnout and it was just great. Thank you so much for all those who came, some from a long, long way. Thanks for all those who helped me in any way with the party. Thanks to those who couldn't come but sent birthday wishes. It was such an awesome day! I was so stressed and busy that it didn't "hit" me until we sang Happy Birthday to him. That is when the tears welled up. I had envisioned singing Happy Birthday to him so many times but it was far sweeter than I had even imagined! He is so funny! He is so very oblivious to his true power, of how much a miracle he is. I can't BELIEVE the lives this kid has touched! I just can't get over it! And he just smiles and goes on about his business! And busy he is! He was so sweet at the party and just let everyone hold him. We passed the kid around like a joint! Hee, hee! When it was time for cake he wasn't sure what to do. He stuck a hand in it and then Riley decided to help him. He took Bryson's entire hand and laid it out flat on the cake, giving him an entire handful of icing that he then proceeded to throw. I call him "The Destroyer" for a reason. I don't know that he ever tasted that cake, he only destroyed it! He even attempted to push the remainder of his cake off of the tray so that it would all be gone. May I just remind you that he does that AT EVERY MEAL! I spend approximately 20 minutes each night cleaning up the remainder of food that he has thrown off of his high chair. He started off the party with a Rock Star shirt and jeans and camp shoes. He ended the party with no pants, just a diaper, an old pajama t-shirt and camo shoes. So cute!
He barely napped all day and I thought he would be gripey but he wasn't and I was SURE he would pass out as soon as we got in the car (I know I wanted to!) but instead he chewed on his shoe all the way home. It probably had cake on it! :)
Once we were home he continued to not sleep until probably 10:30pm. I know he was tired but HECK, you wouldn't have known it then or the next day. I think I was WAY more tired!
Anyway, it was the most amazing birthday ever and I am so very grateful to have so many wonderful people in my life to share Bryson with. I am one blessed girl!!!!
We got so very many donations for Children's, more than I could have imagined. So many! I also got a ton of money to spend on more donations.
I called today and spoke to them to find out how we were going to disperse the donations. I have to say that in my little, dream world we would drag B up and down the halls handing out gifts like it was Christmas but realistically I knew that was not the way it worked. And honestly, I think if I had to step foot back in that ICU floor I would be physically ill, I truly would. I think God intended for it to be this way to spare me any more heartache so instead, it will go like this. We will spend the remainder of the money to buy more things. One thing I really want to buy is mobiles. As you all remember Bryson's mobile was so very important in his healing. As silly as that sounds, it truly was. I swear, he still recognizes it! And many babies did not have mobiles. Just think, all they do all day is lay on their backs and look at machines and monitors, so mobiles are going to be brought forth, many mobiles! So we will bring all the goodies to the circular drive at Children's and they will meet us and unload them and then they will make notes and such. One thing they are going to ask is if we want these things to go to other floors of Children's or just "our" floor. I have thought about this a lot and I want the things to be on "our" floor. Not to be stingy but it is just something I feel right about. I want to picture those soft, silky blankets being laid down underneath a child who just had their heart fixed. I want the fluffy, stuffed animals to be used to hold up a ventilator for a child who is slowly healing. That floor means a lot to me. Which brings me to my next point......Today after talking to Children's and being saddened by the fact that we can't hand the things out and realizing that we can bring Bryson to the lobby floor but not in the unit and realizing that I won't ever step in that unit again.....I realized something...it is time for me to let go...to let go of bad memories...of open chests and tubes and deaths...it is time for me to move on and to feel joy...and only joy. Not joy tinted with fear, or joy tinted with distant memories that make me shudder...but TRUE, REAL JOY! I really feared that starting September 17th on it would be bad..that I would think, "today is the day that they did this...today is the day they did this." but it hasn't been like that. One day, out of nowhere, it just stopped, not fully, but nearly and it has felt so good and so freeing. So I am going to go down there and share the wonderful gifts given by all of you and share my wonderful gift of a sweet, blonde, curly haired little munchkin and that is it. Then I am going to come back and I am going to spend Halloween with him (he is going to be a sock monkey!) and Thanksgiving and Christmas and Easter and another birthday (way more low key than this one I might add) and on and on and on and I hope to be able to share that all with you as well! Oh what fun we will have! I love you all and we would NEVER be here without all of you! NEVER!

Thursday, September 23, 2010

Toilet bowls woes!

Well it is official! Bryson is just a normal one year old boy! Sounds weird, right? On many levels, I mean who wants to say their child is just "normal"? Well, he is extraordinary! We all know that but at the same time, he is NORMAL. We went for his one year old appointment yesterday and he weighs 20 lbs. I know, that is it! I was so surprised. He feel like he weighs 75 pounds! And he looks so very chunky, but he is short too so that explains that. I know the cardiologist wants him to weigh more but the doctor said that his weight is perfect. He is in the 25th percentile for weight. I can't remember his height percentile, low I am sure and he is in the 95th percentile for head circumference! Big headed kid! Hee, hee! When we go to the two year appointment I will get the "talk" about how their heads are bigger than their bodies and they can fall head first into the toilet and drown because their heads are so big and heavy. You laugh, but she really tells me that. I had nightmares of their little legs sprouting out of the toilet, while they kick and sputter toilet water! Seriously?!?!?!?! Anyway, he is great! She said she is sooooo happy about him in every way. He is all caught up and on NO MEDICINES AT ALL! Crazy!!! This is the same kid who had a bad heart, bad kidneys, on 15 different meds, a feeding tube, physically behind by 5 months and they thought was also neurologically damaged! And might I just add that he is as smart as a whip!!! Got it from his mom! :)
He got five shots yesterday and he screamed when he got them but quieted down right after and then we walked in the hallway and there is a little porcelain baby on a shelf. Bryson LOVES babies, their faces especially and he got so excited and then he got right in front the baby and he just cried and moaned to the baby as if he was telling him all about the terrible shots. It was hilarious! Bryson did have a rough time the rest of the day. The shots gave him a pretty good fever and he felt pretty bad but today he is better. He better be, he has a kickin' party to attend!
I am so excited!
I will post TONS of pictures!
Riley is doing great, he is LOVING football and he is so aggressive. I am shocked! It sounds terrible but I love the sound of his helmet smashing into the other kid's helmets. I know, I am turning into one of this sick, Texas football moms. Guilty!
Kory is so sweet too because we went on and on about Riley at football and instead of being jealous he was just so excited for Riley and complimenting him over and over. He just has the kindest heart of anyone I know! You wouldn't know it with his "tough guy" exterior, but he is a sweet teddy bear kid!
I am so proud of my boys!

Friday, September 17, 2010


Today is the day! It is Bryson's Birthday! I can't believe it! It kind of stinks because I haven't been able to tell him happy birthday because he was asleep when I left this morning but he woke up at 12:15am (because of a passing storm) and I whispered "Happy Birthday" to him.
Here are some Bryson facts, written by the big man himself!

I was born on September 17, 2009

I was actually due on October 13, 2009

I weighed in at 7 lbs, 11oz

I spent my first 141 days in Dallas Children's Hospital, 131 of those days were spent in the Cardiac Intensive Care Unit.

My momma held me for the first time when I was over 2 months old.

I had my open heart surgery on September 30th, it took about 5 hours.

I have 12 scars, one which measures 5-6 inches. My scar will not grow as I grow so it will only get smaller as I get bigger.

My sternum was wired shut and so when I get chest x-rays I have two small figure 8's in my chest.

My medical bills were over 7 million dollars...and I am worth EVERY PENNY!

I had thousands (literally thousands) of people praying for me!

I am ticklish under my chin.

I have three teeth, two on bottom and a fang on top! FANGTASTIC!

I like beards, they fascinate me, especially my Dad's.

NO ONE is funnier than my two brothers, NO ONE!

I have my own personal nanny who spoils me rotten everyday!

I love my toys, ALL of them!

I love my bottle, even though I was tube fed for the first 10 months of my life.

I am NOT afraid of the vacuum cleaner but I am VERY afraid of the carwash.

I love my family very, very much and they love me too.


Thursday, September 16, 2010

One more day!

Tomorrow is the big day! Big day indeed! Bryson is turning one year old. I can't believe it! I say it to everyone I can because I just like to say it out loud, I truly do. He is so sweet and I hope to post some neat things tomorrow. I need a good pic tonight so that you can all see how sweet he is. His hair is curling up so cute! I don't know if I will ever cut it and he is sooo blonde!
We took him for an ultrasound today to see if his clot is gone. Funny thing, I SWEAR he had a clot on both clavicles but they only checked the left. Either way if one is gone, I am sure the other is as well. If the clot is gone than we can quit giving him baby aspirin, which can cause Reye's Syndrome in kids. The benefits far outweigh the risks right now but if we can get off of it, we should. IF he has no clots and we get off of baby aspirin we will officially be on NO MEDS, NONE! Isn't that sooo hard to believe??? I can't believe it! I am so proud of Bryson!
Riley and Kory are doing great. Kory is sweet as can be and so funny. He is on facebook now and I am just mortified at times at his posts. He has no filter sometimes! Riley is playing football and he loves it. Secretly, I think he just loves it because he knows it impresses his dad so much, but I could be wrong. I was wrong this one time. :) Hee hee! A girl at school told Riley that he needed to lose weight and he proceeded to tell her that he was putting on weight for football. Funny! You would think he was going straight into Permian after this season! :)

Look for a post tomorrow about a sweet, blue eyed little monster! Love yall!

Monday, September 13, 2010

The Book Is Ready!

How fitting is it that my book about "Bryson's Journey" is ready just days before his first birthday! I am so excited! Many,many thanks to Lynn and Emma Dudney at Author's Discovery Coop. Inc. for making this happen.
If you would like to purchase a book please let me know by e-mailing me at
It is 10.95 and if I have to ship it, it is $13.
Thanks everyone and I hope to have a super cool post on Bryson's big day!!! :)

Tuesday, September 7, 2010

Labor Day Fun!!!

I have to admit, I was DREADING going to the river with little B. I mean, he is a baby and we all know that they can make out of town trips miserable but you know what, he was soooo good! As you can see from the pictures, the International Man of Mystery even got to come. I know it hurts his heart that he doesn't get to see the kids, especially Bryson. He spent so very much time with him at the beginning of his life and now he hardly gets to see him. Although he always makes up for lost time. One morning he got up before me and scooped up B and took him outside to have coffee together. It was sweet!
So we have figured out that B likes to be in the car for about 4 hours. After that, he is done and he screams, it is a mad scream but the boys were real champs in handing him stuff to keep him happy. We went to Leakey and it was so fun, very relaxing. The boys really had a good time. They floated the river and played by the bridge. Bryson loved the water. He played and played and then we would put him in the playpen and he would play with his toys and read his plastic books and then drift off to sleep. He would sleep all night, we even had to wake him up every morning. It was great! I so enjoyed having this time with my family and friends. I laugh because we would have NEVER taken Kory or even Riley to the river when they were not even a year old but now that we have the older boys we drag Bryson everywhere. Before he was born we always discussed how we would drag him all over and then we he was sick for so long I was sure that our lives would never be the same again. To be taking a vacation like that with everyone was so great!
I have been thinking so much about the past. I can't seem to stop and as I said every day it gets a little easier but I look forward to the day that maybe just "one" day I don't think about it. I feel silly because I have this sweet, cherub faced baby reminding me that all is well but then again, there are those scars, constant reminders, every little thing, even good things, are reminders of what we all went through. I really feel like our trip in October to deliver goodies to the kids in the CICU is going to be the turning point for me. I need some really good memories at Children's to replace the bad ones. I can't WAIT to show him off. Funny thing that has crossed my mind, when we were there someone came back with their child just the same way, to show them off and I remember I was happy for them but it made me soooo angry. It was a reminder to me of where we were and where we should have been. I want to be careful to those parents who are there going through that nightmare, to not make them feel that way. I am hoping we will have lots of goodies to pass out and that will make a big difference. I visited with nurse April for almost an hour or more on the way to Leakey and I enjoyed it so much. How is it that you can know someone for four months but feel like you have known them your whole life??? Anyway, I can't wait to see everyone and to show off that cute little stinker! TEN MORE DAYS and Bryson will be one year old. I know it is going to be an exciting day, but an emotional one too. Memories of that day a year ago will haunt me. I wish I could look at the day of his birth as a wonderful memory but that is just never going to happen. But that was one day....five months of scary followed but considering we have a lifetime of happy memories to share with Bryson, that makes me smile!!!!! :)